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[Mapping the intricacies of care networks for persons with disabilities, from the perspectives of users-citizens-guides].

Authors :
Sampaio J
Barbosa DS
Gomes LB
Peixoto DA
Menezes TA
Zózimo HHL
Lyra MFB
Source :
Salud colectiva [Salud Colect] 2021 Jun 07; Vol. 17, pp. e3334. Date of Electronic Publication: 2021 Jun 07.
Publication Year :
2021

Abstract

This article presents an analysis of the production of care networks for persons with disabilities in the state of Paraíba, Brazil. We employed a qualitative methodology with a cartographic approach, involving the participation of four users-citizens-guides. Weekly virtual meetings were held throughout the second half of 2020, in which we were able to collect, systematize, and theorize on four issues: 1) guilt and (non) life expectancy on the part of persons with disabilities; 2) the place of disability in family dynamics; 3) the production of specific core relational dependency networks; and 4) the public vs. private care offerings for persons with disabilities. Based on these findings, we were able to lend visibility to and explicitly affirm the ways in which these user-citizens participate in the complex process of care building for persons with disabilities and their families.

Details

Language :
Spanish; Castilian
ISSN :
1851-8265
Volume :
17
Database :
MEDLINE
Journal :
Salud colectiva
Publication Type :
Academic Journal
Accession number :
34105330
Full Text :
https://doi.org/10.18294/sc.2021.3334