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'It's not that they don't want to access the support . . . it's the impact of the autism' : The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals.

Authors :
Babb C
Brede J
Jones CRG
Elliott M
Zanker C
Tchanturia K
Serpell L
Mandy W
Fox JRE
Source :
Autism : the international journal of research and practice [Autism] 2021 Jul; Vol. 25 (5), pp. 1409-1421. Date of Electronic Publication: 2021 Feb 15.
Publication Year :
2021

Abstract

Lay Abstract: This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals.

Details

Language :
English
ISSN :
1461-7005
Volume :
25
Issue :
5
Database :
MEDLINE
Journal :
Autism : the international journal of research and practice
Publication Type :
Academic Journal
Accession number :
33588579
Full Text :
https://doi.org/10.1177/1362361321991257