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Transition to adult care in cystic fibrosis: The challenges and the structure.

Authors :
Singh J
Towns S
Jayasuriya G
Hunt S
Simonds S
Boyton C
Middleton A
Kench A
Pandit C
Keatley LR
Chien J
Bishop J
Song Y
Robinson P
Selvadurai H
Middleton PG
Fitzgerald DA
Source :
Paediatric respiratory reviews [Paediatr Respir Rev] 2022 Mar; Vol. 41, pp. 23-29. Date of Electronic Publication: 2020 Aug 02.
Publication Year :
2022

Abstract

In developed countries, it is projected that there will be a 70% increase in the number of adults living with Cystic Fibrosis (CF) between 2010 and 2025. This shift in demographics highlights the importance of high-quality transition programmes with developmentally appropriate integrated health care services as the individual moves through adolescence to adulthood. Adolescents living with CF face additional and unique challenges that may have long-term impacts on their health, quality of life and life-expectancy. CF specific issues around socially challenging symptoms, body image, reproductive health and treatment burden differentiate people with CF from their peers and require clinicians to identify and address these issues during the transition process. This review provides an overview of the health, developmental and psychosocial challenges faced by individuals with CF, their guardians and health care teams considering the fundamental components and tools that are required to build a transition programme that can be tailored to suit individual CF clinics.<br /> (Crown Copyright © 2020. Published by Elsevier Ltd. All rights reserved.)

Details

Language :
English
ISSN :
1526-0550
Volume :
41
Database :
MEDLINE
Journal :
Paediatric respiratory reviews
Publication Type :
Academic Journal
Accession number :
32917516
Full Text :
https://doi.org/10.1016/j.prrv.2020.07.009