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Consent and Privacy in the Era of Precision Medicine and Biobanking Genomic Data.
- Source :
-
American journal of law & medicine [Am J Law Med] 2020 May; Vol. 46 (2-3), pp. 167-187. - Publication Year :
- 2020
-
Abstract
- "Big Data represents a challenge that points to the need for collective and political approaches to self-protection rather than solely individual, atomistic approaches."- Anita Allen, "Protecting One's Own Privacy in a Big Data Economy".
- Subjects :
- Decision Making
Humans
Biological Specimen Banks legislation & jurisprudence
Confidentiality legislation & jurisprudence
Genetic Privacy legislation & jurisprudence
Human Experimentation legislation & jurisprudence
Informed Consent legislation & jurisprudence
Precision Medicine ethics
Whole Genome Sequencing ethics
Subjects
Details
- Language :
- English
- ISSN :
- 0098-8588
- Volume :
- 46
- Issue :
- 2-3
- Database :
- MEDLINE
- Journal :
- American journal of law & medicine
- Publication Type :
- Academic Journal
- Accession number :
- 32659188
- Full Text :
- https://doi.org/10.1177/0098858820933493