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Patients' satisfaction with a supportive care program for young breast cancer patients in Mexico: Joven & Fuerte supports patients' needs and eases their illness process.

Authors :
Villarreal-Garza C
Platas A
Miaja M
Mesa-Chavez F
Garcia-Garcia M
Fonseca A
Pineda C
de la Rosa-Pacheco S
Galvez-Hernandez CL
Bargallo-Rocha E
Castro J
Rodriguez-Gomez D
Cruz-Ramos M
Mohar A
Source :
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer [Support Care Cancer] 2020 Oct; Vol. 28 (10), pp. 4943-4951. Date of Electronic Publication: 2020 Feb 04.
Publication Year :
2020

Abstract

Objective: The aim of this study was to evaluate patients' outlook and satisfaction with "Joven & Fuerte: Program for Young Women with Breast Cancer (YWBC) in Mexico" (J&F) and to determine its strengths and areas of improvement to better fulfill patients' information and supportive care needs.<br />Methods: Patients enrolled in J&F for ≥ 6 months at three cancer referral centers were invited via a messaging application to anonymously complete an online survey exploring their perspectives of the program's information delivery, support services, and research component. Descriptive statistics, chi <superscript>2</superscript> test, Student t, and ANOVA were used for analysis.<br />Results: Of 484 eligible patients, 28% completed the survey. The program overall was useful/very useful according to 97% and aided 82% to better cope with their illness. The timing, clarity, and usefulness of the information provided were each described as good/very good by ≥ 83% for the written format and ≥ 98% for the verbal one. Eighty-four percent of patients were very satisfied (≥ 9/10) with psychological support and genetic assessment. The number of support services used was significantly associated with patients' perception of J&F's usefulness. Regarding fertility issues, 45% recalled being informed about preservation strategies and J&F financially supported 27/39 of interested patients. Fifty-eight percent were unaware of J&F's ongoing research component.<br />Conclusions: Patients' satisfaction with J&F is very high, reflecting that the program is meeting Mexican YWBC's needs by providing useful information means and support services in a limited-resource setting. Efforts must keep up to guarantee the program's continuity and advocate for its extension to other oncologic centers.

Details

Language :
English
ISSN :
1433-7339
Volume :
28
Issue :
10
Database :
MEDLINE
Journal :
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
Publication Type :
Academic Journal
Accession number :
32020358
Full Text :
https://doi.org/10.1007/s00520-020-05334-y