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Self-management skills and behaviors, self-efficacy, and quality of life in people with epilepsy from underserved populations.
- Source :
-
Epilepsy & behavior : E&B [Epilepsy Behav] 2019 Sep; Vol. 98 (Pt A), pp. 258-265. Date of Electronic Publication: 2019 Aug 06. - Publication Year :
- 2019
-
Abstract
- Purpose: People with epilepsy (PWE) from underserved populations face significant barriers to epilepsy management and therefore may lack knowledge about epilepsy and self-management (SM) of epilepsy. This paper evaluates SM practices, self-efficacy, outcome expectancy, quality of life, and personal impact of epilepsy in PWE from underserved populations as compared with all PWE.<br />Methods: Recruitment for the Managing Epilepsy Well (MEW) Network PAUSE to Learn Your Epilepsy study occurred from October 2015 to March 2019. Participants were assessed at baseline; after SM education intervention; and 6-, 9-, and 15-month postbaseline assessment. Baseline data from 112 PWE were analyzed for this report.<br />Results: Study population was diverse: 63% were women, 47.3% were non-Hispanic black, 24.1% were Hispanic, and 57.4% had public healthcare coverage. Participants on average had epilepsy for 14 years, and 49.1% reported at least one seizure within the past month, but only 27% reported having used a seizure diary or calendar for seizure tracking. Self-management practices & behaviors were significantly lower among PWE from underserved populations than all PWE, though self-efficacy among PWE from underserved populations was significantly higher.<br />Conclusion: This study identifies the unique epilepsy SM needs of PWE from underserved populations. We discuss the need for a personalized approach for developing SM skills and behaviors among these PWE.<br /> (Copyright © 2019 Elsevier Inc. All rights reserved.)
- Subjects :
- Adolescent
Adult
Aged
Epilepsy economics
Epilepsy therapy
Female
Follow-Up Studies
Humans
Male
Middle Aged
Precision Medicine economics
Precision Medicine methods
Self-Management economics
Self-Management methods
Young Adult
Epilepsy psychology
Precision Medicine psychology
Quality of Life psychology
Self Efficacy
Self-Management psychology
Vulnerable Populations psychology
Subjects
Details
- Language :
- English
- ISSN :
- 1525-5069
- Volume :
- 98
- Issue :
- Pt A
- Database :
- MEDLINE
- Journal :
- Epilepsy & behavior : E&B
- Publication Type :
- Academic Journal
- Accession number :
- 31398690
- Full Text :
- https://doi.org/10.1016/j.yebeh.2019.07.042