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An integrated knowledge translation approach to develop a shared decision-making strategy for use by Inuit in cancer care: a qualitative study.

Authors :
Jull J
Hizaka A
Sheppard AJ
Kewayosh A
Doering P
MacLeod L
Joudain G
Plourde J
Dorschner D
Rand M
Habash M
Graham ID
Source :
Current oncology (Toronto, Ont.) [Curr Oncol] 2019 Jun; Vol. 26 (3), pp. 192-204. Date of Electronic Publication: 2019 Jun 01.
Publication Year :
2019

Abstract

Background: In relation to the general Canadian population, Inuit face increased cancer risks and barriers to health services use. In shared decision-making (sdm), health care providers and patients make health care decisions together. Enhanced participation in cancer care decisions is a need for Inuit. Integrated knowledge translation (kt) supports the development of research evidence that is likely to be patient-centred and applied in practice.<br />Objective: Using an integrated kt approach, we set out to promote the use of sdm by Inuit in cancer care.<br />Methods: An integrated kt study involving researchers with a Steering Committee of cancer care system partners who support Inuit in cancer care ("the team") consisted of 2 theory-driven phases:■ using consensus-building methods to tailor a previously developed sdm strategy and developing training in the sdm strategy; and■ training community support workers (csws) in the sdm strategy and testing the sdm strategy with community members.<br />Results: The team developed a sdm strategy that included a workshop and a booklet with 6 questions for use by csws with patients. The sdm strategy (training and booklet) was finalized based on feedback from 5 urban-based Inuit csws who were recruited and trained in using the strategy. Trained csws were matched with 8 community members, and use of the sdm strategy was assessed during interviews, reported as 6 themes. Participants found the sdm strategy to be useful and feasible for use.<br />Conclusions: An integrated kt approach of structured research processes with partners developed a sdm strategy for use by Inuit in cancer care. Further work is needed to test the sdm strategy.<br />Competing Interests: CONFLICT OF INTEREST DISCLOSURES We have read and understood Current Oncology’s policy on disclosing conflicts of interest, and we declare that we have none.

Details

Language :
English
ISSN :
1718-7729
Volume :
26
Issue :
3
Database :
MEDLINE
Journal :
Current oncology (Toronto, Ont.)
Publication Type :
Academic Journal
Accession number :
31285666
Full Text :
https://doi.org/10.3747/co.26.4729