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Cases in Precision Medicine: Concerns About Privacy and Discrimination After Genomic Sequencing.

Authors :
Stiles D
Appelbaum PS
Source :
Annals of internal medicine [Ann Intern Med] 2019 May 21; Vol. 170 (10), pp. 717-721. Date of Electronic Publication: 2019 May 07.
Publication Year :
2019

Abstract

Patients and research participants have indicated that privacy of their genetic test results is an important concern, particularly with respect to insurance coverage. Internists and other physicians whose patients ask about legal protections for information generated by genome sequencing for clinical purposes can provide both reassurance and caution. Protections for medical information in general, as well as laws in some states that provide additional safeguards for genetic data, should reassure patients that this information will remain private. Patients themselves will need to weigh the risks versus the benefits of generating genomic data in deciding whether to undergo exome sequencing.

Details

Language :
English
ISSN :
1539-3704
Volume :
170
Issue :
10
Database :
MEDLINE
Journal :
Annals of internal medicine
Publication Type :
Academic Journal
Accession number :
31060048
Full Text :
https://doi.org/10.7326/M18-2666