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Survivors' perspectives on risks and benefits of Hodgkin lymphoma treatment: results of a survey by the German Hodgkin Study Group.
- Source :
-
Leukemia & lymphoma [Leuk Lymphoma] 2019 Jun; Vol. 60 (6), pp. 1389-1398. Date of Electronic Publication: 2018 Dec 03. - Publication Year :
- 2019
-
Abstract
- We performed a survey in Hodgkin lymphoma survivors to learn more about their perspectives on treatment risks and benefits. We sent questions to 1149 survivors from the GHSG's HD13-15 trials with ( N = 249) or without ( N =900) documented progression or relapse. The participation rate was 52% ( N =581). After median follow-up of 106 months, 40% of relapse-free and over 60% of relapsed survivors were still worried about late effects and the possibility of relapse. Chemotherapy, largely independent of its intensity, had been a strain on 74% of relapse-free and 90% of relapsed survivors. Most physical, psychological, and socio-economic sequelae were more frequent among relapsed survivors ( p < .05) and described as very burdensome. 74% of relapse-free and 61% of relapsed survivors considered primary cure from Hodgkin lymphoma as the most important aspect in the choice of treatment. Accordingly, primary optimal lymphoma control is of utmost importance from the patients' perspective.
- Subjects :
- Adult
Aftercare
Aged
Antineoplastic Combined Chemotherapy Protocols administration & dosage
Antineoplastic Combined Chemotherapy Protocols economics
Cancer Survivors statistics & numerical data
Disease Progression
Disease-Free Survival
Female
Follow-Up Studies
Hodgkin Disease economics
Hodgkin Disease mortality
Hodgkin Disease pathology
Humans
Male
Middle Aged
Neoplasm Recurrence, Local economics
Neoplasm Recurrence, Local epidemiology
Neoplasm Recurrence, Local psychology
Radiotherapy, Adjuvant adverse effects
Radiotherapy, Adjuvant methods
Randomized Controlled Trials as Topic
Risk Assessment statistics & numerical data
Socioeconomic Factors
Surveys and Questionnaires statistics & numerical data
Young Adult
Antineoplastic Combined Chemotherapy Protocols adverse effects
Cancer Survivors psychology
Hodgkin Disease therapy
Neoplasm Recurrence, Local prevention & control
Patient Preference statistics & numerical data
Subjects
Details
- Language :
- English
- ISSN :
- 1029-2403
- Volume :
- 60
- Issue :
- 6
- Database :
- MEDLINE
- Journal :
- Leukemia & lymphoma
- Publication Type :
- Academic Journal
- Accession number :
- 30507313
- Full Text :
- https://doi.org/10.1080/10428194.2018.1540781