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Autism Disparities: A Systematic Review and Meta-Ethnography of Qualitative Research.

Authors :
Singh JS
Bunyak G
Source :
Qualitative health research [Qual Health Res] 2019 May; Vol. 29 (6), pp. 796-808. Date of Electronic Publication: 2018 Nov 25.
Publication Year :
2019

Abstract

Racial, ethnic, and socioeconomic disparities associated with autism spectrum disorder (ASD) are evident across many service domains including access to early assessment, diagnosis, and therapeutic interventions. To better understand the complex social and structural factors contributing to these disparities, this article offers a systematic review of peer-reviewed qualitative research conducted from 2010 to 2016 in the United States that investigates autism disparities experienced by marginalized communities. Based on these criteria, we identified 24 qualitative research studies and conducted an analysis using meta-ethnography and an intersectional interpretive lens. We identified three interdependent themes contributing to autism disparities, including familial, cultural, and structural barriers. Omissions in the literature were also evident, including a lack of research on underserved adults with ASD and the gendered inequities of caregiving. We discuss the implications of our findings and offer new questions that take an intersectional approach using qualitative research to investigate autism disparities.

Details

Language :
English
ISSN :
1049-7323
Volume :
29
Issue :
6
Database :
MEDLINE
Journal :
Qualitative health research
Publication Type :
Academic Journal
Accession number :
30474491
Full Text :
https://doi.org/10.1177/1049732318808245