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Family-centred health care for children with cerebral palsy.
- Source :
-
Developmental medicine and child neurology [Dev Med Child Neurol] 2019 Jan; Vol. 61 (1), pp. 62-68. Date of Electronic Publication: 2018 Oct 07. - Publication Year :
- 2019
-
Abstract
- Aim: To identify characteristics of young children with cerebral palsy (CP), and intrinsic and extrinsic factors, that may be associated with parental perceptions regarding family-centred health care services.<br />Method: We conducted a cross-sectional study, drawing our sample from the Canadian Cerebral Palsy Registry (CCPR). Parents rated the extent of family-centred care provided by their child's health care teams using the 56-item Measures of Process of Care (MPOC) questionnaire. Environmental and CP phenotypic variables were extracted from the CCPR for group comparisons. Low and high MPOC-56 raters were also compared.<br />Results: Valid responses were obtained from 282 families (90%). All MPOC-56 subscales were highly rated (median ≥6.0), indicating satisfaction with health care services, with the exception of the Providing General Information subscale (median 4.8, interquartile range 3.2-6.0). Parents from Nova Scotia rated all subscales significantly higher than parents from other regions. CP subtype and severity were not significantly associated with MPOC-56 subscale scores. Higher socio-economic status was associated with lower MPOC-56 subscale scores. Higher paternal educational attainment and household income were significantly associated with lower scores on the Providing General Information and Providing Specific Information about the Child subscales respectively.<br />Interpretation: Participants affirmed the provision of family-centred services from Canadian pediatric rehabilitation centres. Sociodemographic factors were associated with parental perceptions of family-centred services.<br />What This Paper Adds: Sociodemographic factors were associated with parental perceptions of family-centred care. Factors intrinsic to the child's cerebral palsy were not associated with parental perceptions.<br /> (© 2018 Mac Keith Press.)
- Subjects :
- Canada
Child, Preschool
Cross-Sectional Studies
Disabled Children rehabilitation
Female
Health Communication
Humans
Male
Patient Care Team
Patient Satisfaction
Patient-Centered Care
Registries
Rehabilitation Centers
Severity of Illness Index
Socioeconomic Factors
Surveys and Questionnaires
Cerebral Palsy rehabilitation
Child Health Services
Parents psychology
Subjects
Details
- Language :
- English
- ISSN :
- 1469-8749
- Volume :
- 61
- Issue :
- 1
- Database :
- MEDLINE
- Journal :
- Developmental medicine and child neurology
- Publication Type :
- Academic Journal
- Accession number :
- 30294783
- Full Text :
- https://doi.org/10.1111/dmcn.14053