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Naive Expectations to Resignation: A Comparison of Life Descriptions of Newly Diagnosed Versus Chronic Persons Living With Stage D HF.

Authors :
Evans MM
Hupcey JE
Kitko L
Alonso W
Source :
Journal of patient experience [J Patient Exp] 2018 Sep; Vol. 5 (3), pp. 219-224. Date of Electronic Publication: 2018 Jan 17.
Publication Year :
2018

Abstract

Purpose: This study examined life descriptions of persons with stage D heart failure (HF) comparing those newly diagnosed to those with chronic HF.<br />Methods: A secondary analysis of interviews from 75 participants followed in a longitudinal study of persons with stage D HF was thematically analyzed. There were 24 participants who were recently diagnosed with stage D HF (less than 2 years) and 51 participants with HF longer than 2 years.<br />Results: Both groups shared life descriptions along a continuum, where recently diagnosed participants described naive expectations with hope for improvement, while the chronic group appeared resigned to their fate and the reality of the limitations of living with HF. Four themes illustrated differences between the groups: outlook on life, activity adjustments, understanding of HF, and mood.<br />Conclusions: Although persons with stage D HF share the same life descriptions, they have differing perspectives of life with HF. Findings from this study can help health-care providers tailor interventions based on the length of time from diagnosis.<br />Competing Interests: Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Details

Language :
English
ISSN :
2374-3735
Volume :
5
Issue :
3
Database :
MEDLINE
Journal :
Journal of patient experience
Publication Type :
Academic Journal
Accession number :
30214929
Full Text :
https://doi.org/10.1177/2374373517750412