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The Pink Underside: The Commercialization of Medical Risk Assessment and Decision-Making Tools for Hereditary Breast Cancer Risk.
- Source :
-
Qualitative health research [Qual Health Res] 2018 Aug; Vol. 28 (10), pp. 1523-1538. Date of Electronic Publication: 2018 Apr 11. - Publication Year :
- 2018
-
Abstract
- The growth of the Internet since the millennium has opened up a myriad of opportunities for education, particularly in medicine. Although those looking for health care information used to have to turn to a face-to-face doctor's visit, an immense library of medical advice is now available at their fingertips. The BRCA genetic predispositions (mutations of the BRCA1 and BRCA2 breast cancer genes) which expose men and women to greater risk of breast, ovarian, and other cancers can be researched extensively online. Several nonprofit organizations now offer online risk assessment and decision-making tools meant to supplement conversation with medical professionals, which in actuality are quickly replacing it. We argue here through a critical qualitative template analysis of several such tools that the discursive frameworks utilized are prone to fearmongering, commercialization, and questionable validity. Left unchecked, these assessment tools could do more harm than good in driving young women especially to take unnecessary extreme surgical action.
- Subjects :
- BRCA1 Protein
BRCA2 Protein
Female
Genetic Predisposition to Disease
Humans
Information Seeking Behavior
Internet
National Cancer Institute (U.S.)
Organizations, Nonprofit
Reproducibility of Results
Risk Assessment standards
Surveys and Questionnaires
United States
Breast Neoplasms genetics
Decision Making
Health Information Systems standards
Risk Assessment methods
Subjects
Details
- Language :
- English
- ISSN :
- 1049-7323
- Volume :
- 28
- Issue :
- 10
- Database :
- MEDLINE
- Journal :
- Qualitative health research
- Publication Type :
- Academic Journal
- Accession number :
- 29642776
- Full Text :
- https://doi.org/10.1177/1049732318767395