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Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1.

Authors :
Halbeisen F
Hogg C
Alanin MC
Bukowy-Bieryllo Z
Dasi F
Duncan J
Friend A
Goutaki M
Jackson C
Keenan V
Harris A
Hirst RA
Latzin P
Marsh G
Nielsen K
Norris D
Pellicer D
Reula A
Rubbo B
Rumman N
Shoemark A
Walker WT
Kuehni CE
Lucas JS
Source :
BMC proceedings [BMC Proc] 2018 Mar 05; Vol. 12 (Suppl 2), pp. 1. Date of Electronic Publication: 2018 Mar 05 (Print Publication: 2018).
Publication Year :
2018

Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.<br />Competing Interests: Not applicableNot applicableJSL has declared that she has received expenses to attend advisory board meetings from Aerocrine, Vertex and Parion. JSL has received research grant funding and honoraria from Circassia. All other authors declare that they have no competing interests.Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Details

Language :
English
ISSN :
1753-6561
Volume :
12
Issue :
Suppl 2
Database :
MEDLINE
Journal :
BMC proceedings
Publication Type :
Academic Journal
Accession number :
29630684
Full Text :
https://doi.org/10.1186/s12919-018-0098-9