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Development of a balance, safe mobility and falls management programme for people with multiple sclerosis.
- Source :
-
Disability and rehabilitation [Disabil Rehabil] 2018 Dec; Vol. 40 (24), pp. 2857-2866. Date of Electronic Publication: 2017 Aug 07. - Publication Year :
- 2018
-
Abstract
- Purpose: To utilise stakeholder input to inform the structure, format and approach of a multiple sclerosis (MS) balance, safe mobility and falls management programme.<br />Materials and Methods: Using a three-round nominal group technique, participants individually rated their agreement with 20 trigger statements, followed by a facilitated group discussion and re-rating. Three mixed groups included service users (nā=ā15) and providers (nā=ā19). Quantitative analysis determined agreement, whilst qualitative responses were analysed thematically.<br />Results: Median scores for each of the 20 trigger statements did not change significantly over sequential rounds, however, deviations around the medians indicated more agreement amongst participants over time. Key recommendations were: Aims and approach: The programme should be tailored to the needs of people with MS. Falls and participation-based outcomes are equally important. Structure and format: The programme should balance expected burden and anticipated benefit, moving away from models requiring weekly attendance and promoting and supporting self-efficacy. Optimising engagement: Support to maintain engagement and intensity of practice over the long term is essential. Sustainability: Adequate funding is necessary. Staff should have MS specific knowledge and experience.<br />Conclusions: Participants collaboratively identified critical components of a MS balance, safe mobility and falls management programme. They also highlighted the importance of a collaborative, user-centred, MS-specific approach. Implications for Rehabilitation People with multiple sclerosis need condition-specific interventions focussed on maximising balance and safe mobility and reducing falls. Programme design should support self-efficacy and flexible engagement. Adequate support and funding are seen as essential by both service users and providers.
- Subjects :
- Adult
Consensus
Efficiency, Organizational
Female
Humans
Male
Middle Aged
Program Development
Range of Motion, Articular
Self Efficacy
Accidental Falls prevention & control
Exercise Therapy methods
Mobility Limitation
Multiple Sclerosis physiopathology
Multiple Sclerosis psychology
Multiple Sclerosis rehabilitation
Patient Education as Topic methods
Postural Balance
Subjects
Details
- Language :
- English
- ISSN :
- 1464-5165
- Volume :
- 40
- Issue :
- 24
- Database :
- MEDLINE
- Journal :
- Disability and rehabilitation
- Publication Type :
- Academic Journal
- Accession number :
- 28783979
- Full Text :
- https://doi.org/10.1080/09638288.2017.1362041