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The ethics of community-based research with people who use drugs: results of a scoping review.
- Source :
-
BMC medical ethics [BMC Med Ethics] 2016 Apr 29; Vol. 17 (1), pp. 25. Date of Electronic Publication: 2016 Apr 29. - Publication Year :
- 2016
-
Abstract
- Background: Drug user networks and community-based organizations advocate for greater, meaningful involvement of people with lived experience of drug use in research, programs and services, and policy initiatives. Community-based approaches to research provide an opportunity to engage people who use drugs in all stages of the research process. Conducting community-based participatory research (CBPR) with people who use drugs has its own ethical challenges that are not necessarily acknowledged or supported by institutional ethics review boards. We conducted a scoping review to identify ethical issues in CBPR with people who use drugs that were documented in peer-reviewed and grey literature.<br />Methods: The search strategy focused on three areas; community-based research, ethical issues, and drug use. Searches of five academic databases were conducted in addition to a grey literature search, hand-searching, and consultation with organizational partners and key stakeholders. Peer reviewed literature and community reports published in English between 1985 and 2013 were included, with initial screening conducted by two reviewers.<br />Results: The search strategy produced a total of 874 references. Twenty-five references met the inclusion criteria and were included in our thematic analysis. Five areas were identified as important to the ethics of CBPR with people who use drugs: 1) participant compensation, 2) drug user perspectives on CBPR, 3) peer recruitment and representation in CBPR, 4) capacity building, and 5) participation and inclusion in CBPR.<br />Conclusions: We critically discuss implications of the emerging research in this field and provide suggestions for future research and practice.
Details
- Language :
- English
- ISSN :
- 1472-6939
- Volume :
- 17
- Issue :
- 1
- Database :
- MEDLINE
- Journal :
- BMC medical ethics
- Publication Type :
- Academic Journal
- Accession number :
- 27129927
- Full Text :
- https://doi.org/10.1186/s12910-016-0108-2