Back to Search
Start Over
Characterizing Early Psychosocial Functioning of Parents of Children with Moderate to Severe Genital Ambiguity due to Disorders of Sex Development.
- Source :
-
The Journal of urology [J Urol] 2015 Dec; Vol. 194 (6), pp. 1737-42. Date of Electronic Publication: 2015 Jul 18. - Publication Year :
- 2015
-
Abstract
- Purpose: We examined the psychosocial characteristics of parents of children with disorders of sex development at early presentation to a disorders of sex development clinic. Parental anxiety, depression, quality of life, illness uncertainty and posttraumatic stress symptoms were assessed. Additionally we evaluated the relationship of assigned child gender to parental outcomes.<br />Materials and Methods: A total of 51 parents of children with ambiguous or atypical genitalia were recruited from 7 centers specializing in treatment of disorders of sex development. At initial assessment no child had undergone genitoplasty. Parents completed the Cosmetic Appearance Rating Scale, Beck Anxiety Inventory, Beck Depression Inventory, SF-36, Parent Perception of Uncertainty Scale and Impact of Event Scale-Revised.<br />Results: A large percentage of parents (54.5%) were dissatisfied with the genital appearance of their child, and a small but significant percentage reported symptoms of anxiety, depression, diminished quality of life, uncertainty and posttraumatic stress. Few gender differences emerged.<br />Conclusions: Although many parents function well, a subset experience significant psychological distress around the time of diagnosis of a disorder of sex development in their child. Early screening to assess the need for psychosocial interventions is warranted.<br /> (Copyright © 2015 American Urological Association Education and Research, Inc. Published by Elsevier Inc. All rights reserved.)
- Subjects :
- 46, XX Disorders of Sex Development psychology
Adrenal Hyperplasia, Congenital psychology
Adult
Anxiety Disorders diagnosis
Depressive Disorder diagnosis
Female
Gender Identity
Gonadal Dysgenesis, 46,XY psychology
Humans
Karyotyping
Male
Mass Screening
Stress Disorders, Post-Traumatic diagnosis
Surveys and Questionnaires
Turner Syndrome psychology
Adaptation, Psychological
Anxiety Disorders psychology
Depressive Disorder psychology
Disorders of Sex Development psychology
Parents psychology
Quality of Life psychology
Stress Disorders, Post-Traumatic psychology
Subjects
Details
- Language :
- English
- ISSN :
- 1527-3792
- Volume :
- 194
- Issue :
- 6
- Database :
- MEDLINE
- Journal :
- The Journal of urology
- Publication Type :
- Academic Journal
- Accession number :
- 26196734
- Full Text :
- https://doi.org/10.1016/j.juro.2015.06.104