Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study.

Authors :: Boogerd EA
Maas-van Schaaijk NM
Noordam C
Marks HJ
Verhaak CM
Source :: Journal for specialists in pediatric nursing : JSPN [J Spec Pediatr Nurs] 2015 Jul; Vol. 20 (3), pp. 218-29. Date of Electronic Publication: 2015 Jun 15.
Publication Year :: 2015
Abstract: Purpose: To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care.<br />Design and Methods: Parents of 34 children, aged 2-12, with T1D participated in seven focus group interviews.<br />Results: Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs.<br />Practical Implications: According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.<br /> (© 2015, Wiley Periodicals, Inc.)

Subjects :: Adult
Child
Child, Preschool
Diabetes Mellitus, Type 1 psychology
Female
Humans
Male
Middle Aged
Parents education
Qualitative Research
Surveys and Questionnaires
Diabetes Mellitus, Type 1 nursing
Information Seeking Behavior
Internet statistics & numerical data
Parent-Child Relations
Parenting psychology
Parents psychology

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