Back to Search
Start Over
Quality of life of patients with 46,XX and 46,XY disorders of sex development.
- Source :
-
Clinical endocrinology [Clin Endocrinol (Oxf)] 2015 Feb; Vol. 82 (2), pp. 159-64. Date of Electronic Publication: 2014 Aug 14. - Publication Year :
- 2015
-
Abstract
- Disorders of sex development (DSD) result from abnormalities in the complex process of sex determination and differentiation. An important consideration to guide the assignment of social sex in newborns with ambiguous genitalia is the quality of life (QoL) of these patients in adulthood. The rarity of most DSD conditions makes it difficult to conduct a long-term follow-up of affected patients through adulthood. This review of papers on the QoL of DSD patients evaluated in developing and developed countries by qualitative and quantitative instruments revealed a large spectrum of QoL, ranging from very poor to similar to, or even better than, the normal population. A more adequate QoL was found in patients from tertiary centres, indicating that the medical care of DSD patients should be multidisciplinary and carried out by specialized teams.<br /> (© 2014 John Wiley & Sons Ltd.)
- Subjects :
- Adrenal Hyperplasia, Congenital epidemiology
Adrenal Hyperplasia, Congenital physiopathology
Adrenal Hyperplasia, Congenital psychology
Adult
Disorders of Sex Development epidemiology
Disorders of Sex Development physiopathology
Disorders of Sex Development psychology
Female
Humans
Male
46, XX Disorders of Sex Development epidemiology
46, XX Disorders of Sex Development physiopathology
46, XX Disorders of Sex Development psychology
Disorder of Sex Development, 46,XY epidemiology
Disorder of Sex Development, 46,XY physiopathology
Disorder of Sex Development, 46,XY psychology
Quality of Life
Subjects
Details
- Language :
- English
- ISSN :
- 1365-2265
- Volume :
- 82
- Issue :
- 2
- Database :
- MEDLINE
- Journal :
- Clinical endocrinology
- Publication Type :
- Academic Journal
- Accession number :
- 25040878
- Full Text :
- https://doi.org/10.1111/cen.12561