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Knowledge and risk perception of late effects among childhood cancer survivors and parents before and after visiting a childhood cancer survivor clinic.
- Source :
-
Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses [J Pediatr Oncol Nurs] 2014 Nov-Dec; Vol. 31 (6), pp. 339-49. Date of Electronic Publication: 2014 Jul 10. - Publication Year :
- 2014
-
Abstract
- Survivors of childhood cancer are at risk for a variety of treatment-related late effects and require lifelong individualized surveillance for early detection of late effects. This study assessed knowledge and perceptions of late effects risk before and after a survivor clinic visit. Young adult survivors (≥ 16 years) and parents of child survivors (< 16 years) were recruited prior to initial visit to a cancer survivor program. Sixty-five participants completed a baseline survey and 50 completed both a baseline and follow-up survey. Participants were found to have a low perceived likelihood of developing a late effect of cancer therapy and many incorrect perceptions of risk for individual late effects. Low knowledge before clinic (odds ratio = 9.6; 95% confidence interval, 1.7-92.8; P = .02) and low perceived likelihood of developing a late effect (odds ratio = 18.7; 95% confidence interval, 2.7-242.3; P = .01) were found to predict low knowledge of late effect risk at follow-up. This suggests that perceived likelihood of developing a late effect is an important factor in the individuals' ability to learn about their risk and should be addressed before initiation of education.<br /> (© 2014 by Association of Pediatric Hematology/Oncology Nurses.)
Details
- Language :
- English
- ISSN :
- 1532-8457
- Volume :
- 31
- Issue :
- 6
- Database :
- MEDLINE
- Journal :
- Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
- Publication Type :
- Academic Journal
- Accession number :
- 25013005
- Full Text :
- https://doi.org/10.1177/1043454214532022