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Ethical and epistemological insights: a case study of participatory action research with young people.

Authors :
Chabot C
Shoveller JA
Spencer G
Johnson JL
Source :
Journal of empirical research on human research ethics : JERHRE [J Empir Res Hum Res Ethics] 2012 Apr; Vol. 7 (2), pp. 20-33.
Publication Year :
2012

Abstract

Debates over how to determine age of consent for youth to participate in research feature prominently in the practice of researchers, research ethics boards (REBs), and community decision makers working with youth. In particular, tensions can arise over how the ethical principles of beneficence, autonomy, and justice are interpreted and applied in research involving young people. We discuss our experiences obtaining ethical approval to conduct a participatory action research project involving youth and the differences of opinion we encountered regarding underage youth's capability to make informed consent. We suggest that researchers, REBs, and community decision makers all share a responsibility to conduct proactive outreach to youth participants, so that they are adequately informed of their rights related to research.

Details

Language :
English
ISSN :
1556-2654
Volume :
7
Issue :
2
Database :
MEDLINE
Journal :
Journal of empirical research on human research ethics : JERHRE
Publication Type :
Academic Journal
Accession number :
22565580
Full Text :
https://doi.org/10.1525/jer.2012.7.2.20