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Experience of services as a key outcome in amyotrophic lateral sclerosis (ALS) care: the case for a better understanding of patient experiences.
- Source :
-
The American journal of hospice & palliative care [Am J Hosp Palliat Care] 2012 Aug; Vol. 29 (5), pp. 362-7. Date of Electronic Publication: 2011 Oct 13. - Publication Year :
- 2012
-
Abstract
- People with amyotrophic lateral sclerosis (ALS) frequently express dissatisfaction with services. Patient satisfaction with services in ALS care is not always measured and service user perspectives are not usually included when evaluating the outcomes of care. There is a lack of consensus on what constitutes satisfaction for patients in ALS care. To date, health care professionals' conceptualization of outcomes in ALS care has excluded measures of patient satisfaction with services. Exploring the context of the ALS service user experience of care will identify a conceptual framework that will include the domains of satisfaction with care for patients with ALS. An instrument that draws on the ALS patient perspective of services, developed on the basis of qualitative investigation, should be used to measure satisfaction with services.
- Subjects :
- Health Services Research methods
Humans
Patient Care Team organization & administration
Quality of Life
Treatment Outcome
Amyotrophic Lateral Sclerosis psychology
Amyotrophic Lateral Sclerosis therapy
Outcome Assessment, Health Care
Palliative Care organization & administration
Palliative Care psychology
Patient Satisfaction
Subjects
Details
- Language :
- English
- ISSN :
- 1938-2715
- Volume :
- 29
- Issue :
- 5
- Database :
- MEDLINE
- Journal :
- The American journal of hospice & palliative care
- Publication Type :
- Academic Journal
- Accession number :
- 21998444
- Full Text :
- https://doi.org/10.1177/1049909111423774