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The psychological burden of an initially unexplained illness: patients with sternocostoclavicular hyperostosis before and after delayed diagnosis.
- Source :
-
Health and quality of life outcomes [Health Qual Life Outcomes] 2010 Sep 09; Vol. 8, pp. 97. Date of Electronic Publication: 2010 Sep 09. - Publication Year :
- 2010
-
Abstract
- Background: Sternocostoclavicular hyperostosis (SCCH) is a rare, debilitating, chronic inflammatory disorder of the anterior chest wall due to a chronic sterile osteomyelitis of unknown origin. SCCH is largely underdiagnosed and often misdiagnosed. In individual cases it can remain unrecognized for years. The purpose of this study is twofold. Firstly, to evaluate the psychological condition of SCCH patients, both in the sometimes quite extended pre-diagnostic period between first manifestations and confirmed diagnosis of the disease, and in the current situation. Secondly, to investigate the relationships between the pre-diagnostic and the current psychological conditions of confirmed SCCH patients.<br />Methods: Structured interviews were held with 52 confirmed SCCH patients. Questionnaires were included to assess posttraumatic stress symptoms, social support, aspects of pain, illness perceptions, self-reported health status, and quality of life.<br />Results: SCCH patients reported stronger posttraumatic stress symptoms, more unfavorable illness perceptions, lower health status, and poorer quality of life than healthy individuals and patients with other diseases or traumatic experiences. Psychological distress in the pre-diagnostic period was associated with unfavorable conditions in the current situation.<br />Conclusion: SCCH is an illness with serious psychological consequences. Psychological monitoring of patients with unexplained complaints is recommended as long as a diagnosis has not been reached.
- Subjects :
- Adult
Age of Onset
Aged
Female
Health Status
Humans
Hyperostosis, Sternocostoclavicular diagnosis
Male
Middle Aged
Netherlands
Rare Diseases diagnosis
Socioeconomic Factors
Surveys and Questionnaires
Young Adult
Cost of Illness
Hyperostosis, Sternocostoclavicular psychology
Quality of Life psychology
Rare Diseases psychology
Stress Disorders, Post-Traumatic etiology
Subjects
Details
- Language :
- English
- ISSN :
- 1477-7525
- Volume :
- 8
- Database :
- MEDLINE
- Journal :
- Health and quality of life outcomes
- Publication Type :
- Academic Journal
- Accession number :
- 20828391
- Full Text :
- https://doi.org/10.1186/1477-7525-8-97