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Reporting results of human biomonitoring of environmental chemicals to study participants: a comparison of approaches followed in two Canadian studies.
- Source :
-
Journal of epidemiology and community health [J Epidemiol Community Health] 2011 Mar; Vol. 65 (3), pp. 191-8. Date of Electronic Publication: 2010 Jul 13. - Publication Year :
- 2011
-
Abstract
- Biomonitoring is used increasingly as an indicator and quantitative measure of exposure; however, there is a large gap in interpreting and communicating biomonitoring results to study participants. Two separate, national biomonitoring initiatives are under way in Canada; the household recruitment-based Canadian Health Measures Survey (CHMS) and the clinic recruitment-based Maternal-Infant Research on Environmental Chemicals (MIREC) Study. The CHMS provides participants with the option to receive all their results, but this option is not provided to MIREC participants. The approach to reporting results to participants depends on the availability of reference ranges and guidelines for which tissue concentrations may be interpreted as being elevated or associated with increased health risks, how participants are recruited, unique vulnerabilities of the population, legislation governing access to personal information, and decisions of research ethics committees. It is the researchers' responsibility to present the best case for their approach and, once the decision has been made, to inform participants about access to their results through the consent process.
- Subjects :
- Adolescent
Adult
Beneficence
Biomarkers blood
Biomarkers urine
Canada
Child
Data Collection methods
Disclosure
Environmental Monitoring methods
Environmental Pollutants analysis
Female
Government Programs
Health Surveys
Humans
Interviews as Topic
Life Style
Male
Middle Aged
Personal Autonomy
Population Surveillance methods
Professional-Patient Relations ethics
Reference Values
Risk Assessment ethics
Risk Assessment methods
Socioeconomic Factors
Young Adult
Environmental Exposure analysis
Environmental Monitoring ethics
Human Experimentation ethics
Research Subjects psychology
Subjects
Details
- Language :
- English
- ISSN :
- 1470-2738
- Volume :
- 65
- Issue :
- 3
- Database :
- MEDLINE
- Journal :
- Journal of epidemiology and community health
- Publication Type :
- Academic Journal
- Accession number :
- 20628082
- Full Text :
- https://doi.org/10.1136/jech.2008.085597