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Quality of life in couples living with Huntington's disease: the role of patients' and partners' illness perceptions.
- Source :
-
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2007 Jun; Vol. 16 (5), pp. 793-801. Date of Electronic Publication: 2007 Mar 21. - Publication Year :
- 2007
-
Abstract
- Research suggests that chronically ill patients and their partners perceive illness differently, and that these differences have a negative impact on patients' quality of life (QoL). This study assessed whether illness perceptions of patients with Huntington's disease (HD) differ from those of their partners, and examined whether spousal illness perceptions are important for the QoL of the couples (n = 51 couples). Partners reported that their HD-patient spouses suffered more symptoms and experienced less control than the patients themselves reported. Illness perceptions of patients and partners correlated significantly with patient QoL. Partners' beliefs in a long duration of the patients' illness and less belief in cure, were associated with patient vitality scores. Suggestions for future research emphasize the importance of qualitative research approaches in combination with cognitive-behavioural approaches.
- Subjects :
- Female
Humans
Huntington Disease physiopathology
Male
Middle Aged
Netherlands
Pilot Projects
Psychometrics
Social Support
Surveys and Questionnaires
Adaptation, Psychological
Attitude to Health
Caregivers psychology
Huntington Disease psychology
Perception
Quality of Life
Sickness Impact Profile
Spouses psychology
Subjects
Details
- Language :
- English
- ISSN :
- 0962-9343
- Volume :
- 16
- Issue :
- 5
- Database :
- MEDLINE
- Journal :
- Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
- Publication Type :
- Academic Journal
- Accession number :
- 17375373
- Full Text :
- https://doi.org/10.1007/s11136-007-9194-4