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A difference in perception of quality of life in chronically ill children was found between parents and pediatricians.
- Source :
-
Journal of clinical epidemiology [J Clin Epidemiol] 2005 May; Vol. 58 (5), pp. 495-502. - Publication Year :
- 2005
-
Abstract
- Background and Objectives: Quality of life measurements can help to estimate the well-being of chronically ill patients, and disclose discrepancies in perception between physicians and patients that might otherwise interfere with the effectiveness of treatment. The objective was to investigate the differences in perception of quality of life between parents of chronically ill children and pediatricians.<br />Methods: A cross-sectional study was conducted in four tertiary pediatric care centers in The Netherlands. The Health Utilities Index mark 3 (HUI3) was used by 37 pediatricians and 279 parents of patients (children aged 1 to 17 years) with cystic fibrosis admitted either in daycare or for a pneumonia, or patients with newly diagnosed acute lymphoblastic leukemia, juvenile idiopathic arthritis, or asthma.<br />Results: Differences in perception of quality of life between parents and pediatricians appeared to be dependent of the disease. In patients with acute lymphoblastic leukemia (OR 7.4; [95% CI 2.88-18.97], juvenile idiopathic arthritis (4.7; [95% CI 2.00-11.22]), and asthma (2.3; [95% CI 1.13-4.69]) a difference in perception was more likely to occur than in patients with cystic fibrosis admitted in daycare.<br />Conclusion: At the onset of a chronic disease, the parents of pediatric patients may be misunderstood by health care professionals, especially in subjective attributes. Assessment of quality of life may contribute to better understanding between pediatricians and parents, and thus may even enhance compliance and treatment effects.
- Subjects :
- Adolescent
Arthritis, Juvenile physiopathology
Arthritis, Juvenile psychology
Arthritis, Juvenile rehabilitation
Asthma physiopathology
Asthma psychology
Asthma rehabilitation
Child
Child, Preschool
Chronic Disease psychology
Cognition
Cross-Sectional Studies
Cystic Fibrosis physiopathology
Cystic Fibrosis psychology
Cystic Fibrosis rehabilitation
Emotions
Female
Health Status Indicators
Humans
Infant
Locomotion physiology
Male
Pain physiopathology
Precursor Cell Lymphoblastic Leukemia-Lymphoma physiopathology
Precursor Cell Lymphoblastic Leukemia-Lymphoma psychology
Precursor Cell Lymphoblastic Leukemia-Lymphoma rehabilitation
Speech physiology
Chronic Disease rehabilitation
Parents psychology
Pediatrics
Quality of Life
Social Perception
Subjects
Details
- Language :
- English
- ISSN :
- 0895-4356
- Volume :
- 58
- Issue :
- 5
- Database :
- MEDLINE
- Journal :
- Journal of clinical epidemiology
- Publication Type :
- Academic Journal
- Accession number :
- 15845336
- Full Text :
- https://doi.org/10.1016/j.jclinepi.2004.09.010