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Australian Idiopathic Pulmonary Fibrosis Registry: Vital lessons from a national prospective collaborative project.
- Source :
-
Respirology . Oct2014, Vol. 19 Issue 7, p1088-1091. 4p. - Publication Year :
- 2014
-
Abstract
- There is little Australian epidemiologic data on idiopathic pulmonary fibrosis ( IPF), a relatively uncommon but devastating disease. The vast geographic distances in Australia have been a major impediment for collaborative research into IPF. A collaborative national effort, the Australian IPF Registry, has been formed, launched and is recruiting successfully ( n = 359, January 2014). Our experience provides unique insights for others wishing to set up IPF registries and in time for a global IPF registry. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 13237799
- Volume :
- 19
- Issue :
- 7
- Database :
- Academic Search Index
- Journal :
- Respirology
- Publication Type :
- Academic Journal
- Accession number :
- 98055173
- Full Text :
- https://doi.org/10.1111/resp.12358