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A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions.

Authors :
Aoun, Samar M
Bentley, Brenda
Funk, Laura
Toye, Chris
Grande, Gunn
Stajduhar, Kelli J
Source :
Palliative Medicine. May2013, Vol. 27 Issue 5, p437-446. 10p. 2 Charts.
Publication Year :
2013

Abstract

The article discusses a study to evaluate family care-giving for patient with motor neuron disease and suggest interventions to alleviate burden and improve the quality of life for people in this group. The study found that motor neuron disease family caregivers experienced a substantial burden and distress, and the need for improvements in access to palliative care services and the absence of interventions to improve care. The need is to provide direct practical and psychosocial support.

Details

Language :
English
ISSN :
02692163
Volume :
27
Issue :
5
Database :
Academic Search Index
Journal :
Palliative Medicine
Publication Type :
Academic Journal
Accession number :
87368865
Full Text :
https://doi.org/10.1177/0269216312455729