Aphasia centre science: What makes an aphasia centre work?

BackgroundAimsMethods and ProceduresOutcomes and ResultsConclusionsPeople with aphasia are often discharged from rehabilitation services with chronic communication disability, ongoing challenges in participation, and limited access to long-term support. Aphasia centres aim to fill this gap through the provision of dedicated aphasia programming within a social model of care. Preliminary research suggests that aphasia centres are effective in improving linguistic and psychosocial outcomes, however, the mechanisms by which this occurs are less clear.(1) To describe the structure and operation of aphasia centres internationally; (2) To describe the factors perceived to contribute to aphasia centre effectiveness and sustainability.Explanatory, sequential mixed-methods design. A quantitative online survey was used to gather information about the structure and operations of existing aphasia centres. Data were analysed using descriptive statistics. Semi-structured email interviews explored participant perceptions of factors contributing to centre outcomes and sustainability. Interview data were analysed using inductive thematic analysis.Fourteen aphasia centres were included in the sample, and all reported offering therapy that was predominantly activity and participation focused and group based. In terms of staffing profile, allied health professionals, specifically speech pathologists, were employed in the greatest numbers. An “effective” centre was conceptualised as one that meets the complex needs of consumers. Committed staff, a sense of community, person-centred service provision and consumer involvement were perceived to be key factors influencing effectiveness. Diversification of funding was perceived to be critical to sustainability.Involving consumers in centre operations, facilitating social connectedness and community networks and diversifying funding sources was perceived to contribute to service effectiveness and sustainability. Financial constraints and sufficient staffing remained globally recognised barriers to continued operation. [ABSTRACT FROM AUTHOR]