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Disability by association for siblings of adolescents and adults with cognitive disabilities.

Authors :
Scavarda, Alice
Source :
Disability & Society. Oct2024, Vol. 39 Issue 10, p2546-2564. 19p.
Publication Year :
2024

Abstract

This paper analyses the impact of disability on the social identities of siblings of young people and adults with cognitive disabilities. The main aim is to empirically support the concept of 'disability by association', which refers to the attribution of an associative identity due to the presence of a disabled member in the family. Evidence is drawn from a qualitative study, made up of 32 in-depth interviews and two focus groups with siblings without disabilities. The results confirmed the impact of interactive effects on the lives and behaviours of the interviewees. The internalisation of the oppression experienced by siblings, even in the absence of actual negative incidents, limits their social life experience and identity construction. Although the siblings develop non-medical representations of disability and impairment, this conceptual repertoire is not strong enough to challenge devalued images of cognitive disability. Points of interest: Siblings' points of view are underdeveloped, while most studies focused on parents' perspectives. The research found that siblings have different views on disability and impairment than parents. Siblings may experience stigma and exclusion due to their brothers and sisters' disability. The research recommended that siblings' difficulties and needs be taken into account when talking about the experience of disability within families. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
09687599
Volume :
39
Issue :
10
Database :
Academic Search Index
Journal :
Disability & Society
Publication Type :
Academic Journal
Accession number :
179941691
Full Text :
https://doi.org/10.1080/09687599.2023.2215393