Experience of Caring for Children with Chronic Kidney Disease According to Parents and Caregiver: Integrative Review.

Introduction: Children with chronic kidney disease (CKD) have parental responsibility for their care and medical management throughout their lives. The causes of distress associated with caring for a child on dialysis are rarely known to parents. The problems faced by parents require support and empowerment to be able to improve the quality of life for their children. For this reason, information is needed in the form of the challenges faced by parents or caregivers of children. Aims: This study described the experience of a parent and caregiver caring for children with chronic kidney disease. Methods: An integrative review study was conducted to explore the experience of a parent and caregiver caring for children with CKD. Electronic databases and reference lists of relevant articles were searched until March 2023. Guided by PRISMA guidelines, five electronic databases-PubMed, EBSCO, PROQUEST, Science Direct, and Google Scholar-were searched for relevant articles published in English. Results: Ten articles were identified according to the review experience of parents and caregivers in the form of lack of sleep, fatigue, stress, burden, depression, dynamics and emotional disturbances in family members, responsibility, guilt, suffocation, hopelessness, inhibition of subjectivity, lack of understanding, tensions in the family, the health care system, satisfaction, and disappointment, as well as objectification and depersonalization. Conclusion: The many problems faced by parents and caregivers in caring for children with CKD require action in the form of social support, knowledge about home care, the impact of dialysis, and the ability to be fair to siblings. [ABSTRACT FROM AUTHOR]