Changing the Story.

This article highlights the work of four individuals who are making significant contributions to the field of sickle cell research and advocacy. Obiageli Nnodu, a clinical hematologist and sickle cell researcher in Nigeria, is focused on implementing widespread newborn screening to improve survival rates for children with sickle cell disease. Wally R. Smith, a hematologist in the United States, has dedicated his career to improving pain management and care for adults with sickle cell disease. Stuart Orkin, a hematologist and pediatrician, is researching gene therapy for sickle cell disease, specifically targeting the production of fetal hemoglobin. Lakiea Bailey, a sickle cell patient and scientist, is advocating for patient-centered care and collaboration among advocacy groups. Julie Makani, a hematologist in Tanzania, is working to improve patient care and policy through the collection of clinical data and advancing genomics research in Africa. These individuals are making significant strides in the field and improving the lives of those affected by sickle cell disease. [Extracted from the article]