L'approche multidisciplinaire lors de l'annonce d'un diagnostic en pédiatrie : 45 ans d'expérience d'accompagnement auprès des parents à la clinique des maladies neuromusculaires.

A progressive illness diagnosis in a child is a shock for families. This decisive step can even influence the way the illness will be experienced. An inadequate approach has impacts on the psychological and social health of patients and their families. This is a difficult time, both for the parents and for the professionals involved. Since the creation of the neuromuscular diseases clinic at CHU Sainte-Justine in Quebec in 1979, healthcare professionals have been thinking about the best practices to put in place in order to properly support families in this event. Through their experiences and a brief literature review, a method was implemented to promote the therapeutic relationship between families and the healthcare team. The announcements are carried out by a multidisciplinary team composed of a neurologist and a member of the psychosocial team. The doctor leads the discussion to promote the relationship with the patient. Then, the role of the psychosocial worker is to take up the elements of the diagnosis and to welcome the emotions experienced. Parents are experiencing a major crisis, but must still continue to maintain their parental role. The involvement of a psychosocial team is therefore essential from the announcement of the diagnosis. Their interventions are facilitating elements for longer-term interdisciplinary care. [ABSTRACT FROM AUTHOR]