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Improving Care for Marginalized Populations at Risk for Hereditary Cancer Syndromes: Innovations that Expanded Reach in the CHARM Study.

Authors :
Gilmore, Marian J.
Knerr, Sarah
Kraft, Stephanie A.
Bulkley, Joanna E.
Biesecker, Barbara B.
Feigelson, Heather Spencer
Hunter, Jessica Ezzell
Jenkins, Charisma L.
Kauffman, Tia L.
Lee, Sandra Soo-Jin
Liles, Elizabeth G.
Mittendorf, Kathleen F.
Muessig, Kristin R.
Porter, Kathryn M.
Rolf, Bradley A.
Rope, Alan F.
Zepp, Jamilyn M.
Anderson, Katherine Patrice
Devine, Beth
Joseph, Galen
Source :
Public Health Genomics. Jan-Dec2024, Vol. 27 Issue 1, p16-22. 7p.
Publication Year :
2024

Abstract

The CHARM study aimed to improve access to genomic health care for marginalized populations at risk for hereditary cancer syndromes. The study utilized communication strategies and digital materials to engage patients and streamline the genomics care process. The results showed that the approach successfully reached patients who may be missed by traditional care pathways and highlighted the importance of relationship-oriented communication strategies and remote technologies in making genetic counseling more inclusive and accessible. The study also emphasized the importance of a diverse research workforce and ongoing relationships with patient advisors to improve community engagement. Overall, the CHARM study demonstrated the value of multilevel, health system-embedded interventions in genomic medicine and highlighted the need for further research to expand the reach of genomic care. [Extracted from the article]

Details

Language :
English
ISSN :
16624246
Volume :
27
Issue :
1
Database :
Academic Search Index
Journal :
Public Health Genomics
Publication Type :
Academic Journal
Accession number :
176180804
Full Text :
https://doi.org/10.1159/000535610