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Families' experiences with supports after receiving a prenatal diagnosis of down syndrome.

Authors :
Keilty, Bonnie
Jackson, Melissa A.
Smith, JaneDiane
Source :
Early Childhood Research Quarterly. 2024 1st Quarter, Vol. 66, p1-10. 10p.
Publication Year :
2024

Abstract

• Families with a prenatal diagnosis are not eligible for early intervention until their baby is born despite other developmental programs starting during pregnancy. • Families appraisals of their formal, intermediate, and informal supports to meet their desire for a positive, hopeful pregnancy and parenting vision varied. • Early Intervention could support families in meeting their prenatal goals that families' currently existing resources do not. In the United States, families whose infants or toddlers have a diagnosis that results in a high likelihood of developmental delay or disability are automatically eligible for early intervention (EI). When families know prenatally of this diagnosis, they are not eligible for EI until their baby is born despite other developmental programs starting during pregnancy. Seventeen families who had a prenatal diagnosis of Down syndrome shared their experiences with formal, intermediate, and informal resources during their pregnancy. Findings centered on families' appraisals of those resources to meet their desire for a positive, hopeful pregnancy and parenting vision. Implications are discussed for early childhood prenatal home visitors, early childhood professionals overall, and EI systems and professionals. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08852006
Volume :
66
Database :
Academic Search Index
Journal :
Early Childhood Research Quarterly
Publication Type :
Academic Journal
Accession number :
173700960
Full Text :
https://doi.org/10.1016/j.ecresq.2023.08.007