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Family functioning and quality of life among children with nephrotic syndrome during the first pandemic wave.
- Source :
-
Pediatric Nephrology . Sep2023, Vol. 38 Issue 9, p3193-3198. 6p. 1 Graph. - Publication Year :
- 2023
-
Abstract
- Background: During the SARS-CoV-2 global pandemic, one of the longest lockdowns worldwide occurred in Ontario, Canada, during the first wave. For parents and children managing care at home and at risk for COVID-19, the impact on their psychosocial functioning is unknown. Methods: A total of 122 families of children aged 2–18 years were enrolled as part of the prospective cohort of childhood nephrotic syndrome and completed a survey during the first wave of the pandemic (August 21–December 10), 2020. In a subset, 107 families had data available pre-pandemic to assess change. Validated measures included the McMaster Family Assessment Device (FAD) for parents and children ≥ 12 years for family functioning, the Patient Health Questionnaire for Depression and Anxiety (PHQ-4) for both parent and child, and Pediatric Quality of Life Inventory (PEDSQL™-V4) for children only. Scores were compared using Student's t-test or the Mann–Whitney U test, as appropriate. Results: Among the 107 children, 71% were male with a mean age of 9 years old at the time of questionnaire completion, and the mean age of parents was 41 years old. Parents and children reported that family functioning improved during COVID (parent: p < 0.01; child: p = 0.05). Children's overall HRQOL declined (p = 0.04), specifically increased sleep disruption (p = 0.01). Increasing child age was associated with a greater sleep disruption (β = − 1.6 [IQR: − 2.6, − 0.67]) and a related decrease in QOL (β = − 1.0 [IQR: − 1.7, − 0.2]), adjusted for sex. Conclusions: Despite the positive effects of family dynamics during the first wave, there were negative effects of sleep disruptions and reduced quality of life in children, especially among older children. [ABSTRACT FROM AUTHOR]
- Subjects :
- *COVID-19
*NEPHROTIC syndrome
*HOME care services
*AGE distribution
*FAMILIES
*MANN Whitney U Test
*PSYCHOSOCIAL functioning
*SURVEYS
*T-test (Statistics)
*SLEEP disorders
*QUALITY of life
*DESCRIPTIVE statistics
*QUESTIONNAIRES
*FAMILY relations
*COVID-19 pandemic
*PARENTS
*LONGITUDINAL method
*DISEASE risk factors
*CHILDREN
Subjects
Details
- Language :
- English
- ISSN :
- 0931041X
- Volume :
- 38
- Issue :
- 9
- Database :
- Academic Search Index
- Journal :
- Pediatric Nephrology
- Publication Type :
- Academic Journal
- Accession number :
- 169967813
- Full Text :
- https://doi.org/10.1007/s00467-022-05809-6