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Developmental Profiles in Children and Young Adults with Alexander Disease.
- Source :
-
Developmental Neurorehabilitation . May2023, Vol. 26 Issue 4, p253-261. 9p. 2 Charts, 6 Graphs. - Publication Year :
- 2023
-
Abstract
- The study aims to describe the developmental profile of children and young adults with Alexander disease [AxD] infantile form, analyzing their clinical features, adaptive behavior and neuropsychological skills. Participants were eight children or young adults (Mean age = 11 years; SD = 6.86; range = 5–23) and their parents. A multi-method approach was adopted to assess participant competencies: (1) an online parent survey, (2) a semi-structured interview with parents, and (3) a direct assessment of the participant's neuropsychological skills. Only four parents and their children completed all measures, and a common developmental profile could not be identified. The participants experienced substantial impairment in gross-motor skills, memory and narrative macrostructure. Most parents reported a regressive trend in at least one area. The high individual variability and the regressive trend highlight the need for an accurate and periodic assessment of each individual's developmental profile. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 17518423
- Volume :
- 26
- Issue :
- 4
- Database :
- Academic Search Index
- Journal :
- Developmental Neurorehabilitation
- Publication Type :
- Academic Journal
- Accession number :
- 163950695
- Full Text :
- https://doi.org/10.1080/17518423.2023.2209834