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Preferences of Older People With a Life-Limiting Illness: A Discrete Choice Experiment.

Authors :
Johnston, Bridget M
Daveson, Barbara
Normand, Charles
Ryan, Karen
Smith, Melinda
McQuillan, Regina
Higginson, Irene
Selman, Lucy
Tobin, Katy
BuildCARE
Source :
Journal of Pain & Symptom Management. Aug2022, Vol. 64 Issue 2, p137-145. 9p.
Publication Year :
2022

Abstract

<bold>Context: </bold>There is limited evidence about which elements and characteristics of palliative care service provision improve the experiences of older people living with life-limiting illness.<bold>Objectives: </bold>To evaluate older patients' (≥65 years) preferences for elements of services and supports and to explore relationships between patient characteristics and the patterns of preferences.<bold>Methods: </bold>A cross-sectional survey undertaken in Ireland and England using a Discrete Choice Experiment with people accessing specialist palliative care services. A random-effects probit model was used to estimate patient preferences.<bold>Results: </bold>Of the 77 patients were interviewed, 51 participated in the Discrete Choice Experiment component of the interview (response rate = 66%). Participants prioritized support that minimized unpaid caregiver burden (P < 0.001). They also preferred ease of access to services including out-of-hours access (P < 0.001) and free care at home (P < 0.001). Quality of life was prioritized over quantity of life (<0.001).<bold>Conclusion: </bold>People living with a life-limiting illness value care that focuses on quality of life, ensures barrier-free access to services and provides sufficient support for relatives. In the context of limited resources and growing demand for care, this study provides evidence about the service elements palliative care delivery models should prioritize and evaluate. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08853924
Volume :
64
Issue :
2
Database :
Academic Search Index
Journal :
Journal of Pain & Symptom Management
Publication Type :
Academic Journal
Accession number :
157865120
Full Text :
https://doi.org/10.1016/j.jpainsymman.2022.04.180