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Follow-up practices for children and adolescents with celiac disease: results of an international survey.
- Source :
-
European Journal of Pediatrics . Mar2022, Vol. 181 Issue 3, p1213-1220. 8p. 3 Charts. - Publication Year :
- 2022
-
Abstract
- Adequate follow-up in celiac disease is important to improve dietary compliance and treat disease-related symptoms and possible complications. However, data on the follow-up of celiac children is scarce. We aimed to assess current pediatric celiac follow-up practices across Europe. Pediatricians and pediatric gastroenterologists from 35 countries in Europe, Israel, Turkey, and Russia completed an anonymous survey which comprised a 52-item questionnaire developed by the ESPGHAN Special Interest Group on Celiac Disease. A total of 911 physicians, the majority of whom exclusively worked in pediatric care (83%) and academic institutions (60%), completed the questionnaire. Mean age and mean experience with celiac care were 48.7 years (± 10.6) and 15.7 years (± 9.9), respectively. The vast majority (≥ 92%) always assessed anthropometry, dietary adherence, and tissue-transglutaminase IgA-antibodies at every visit, with the first visit being between 3 and 6 months after diagnosis. Other parameters (% always tested) were as follows: complete blood count (60%), iron status (48%), liver enzymes (42%), thyroid function (38%), and vitamin D (26%). Quality of life was never assessed by 35% of the responding physicians. Transition to adult care was mostly completed via a written transition report (37%) or no formal transition at all (27%). Conclusions: Follow-up of celiac children and adolescents in Europe may be improved, especially regarding a more rational use of (laboratory) tests, dietary and QoL assessment, and transition to adult care. Evidence-based advice from international scientific societies is needed. What is Known: • Follow-up in celiac disease is important to treat disease-related symptoms, improve dietary compliance, and prevent possible complications. • There is a lack of consensus about the appropriate follow-up. What is New: • Almost all European physicians assess anthropometry, tissue-transglutaminase IgA-antibodies, and dietary adherence at every visit, but there are large variations in other follow-up aspects. • Follow-up could be improved by a more rational use of (laboratory) tests, increased intention to dietary compliance, and quality of life together with transition programs to adult care. [ABSTRACT FROM AUTHOR]
- Subjects :
- *CELIAC disease treatment
*PATIENT aftercare
*LIVER function tests
*THYROID gland function tests
*IMMUNOGLOBULINS
*NUTRITIONAL assessment
*ANTHROPOMETRY
*IRON
*TRANSITIONAL care
*PEDIATRICS
*DIET
*IRON in the body
*VITAMIN D
*QUESTIONNAIRES
*QUALITY of life
*CHI-squared test
*DESCRIPTIVE statistics
*PATIENT compliance
*BLOOD cell count
*DATA analysis software
*GASTROENTEROLOGISTS
*CHILDREN
*ADOLESCENCE
Subjects
Details
- Language :
- English
- ISSN :
- 03406199
- Volume :
- 181
- Issue :
- 3
- Database :
- Academic Search Index
- Journal :
- European Journal of Pediatrics
- Publication Type :
- Academic Journal
- Accession number :
- 155625553
- Full Text :
- https://doi.org/10.1007/s00431-021-04318-2