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What matters to patients and clinicians when discussing the impact of cancer medicines on health-related quality of life? Consensus-based mixed methods approach in prostate cancer.

Authors :
Dunlop, Emma
Ferguson, Aimee
Mueller, Tanja
Baillie, Kelly
Clarke, Julie
Laskey, Jennifer
Kurdi, Amanj
Wu, Olivia
Jones, Rob
Glen, Hilary
Bennie, Marion
Source :
Supportive Care in Cancer. Apr2022, Vol. 30 Issue 4, p3141-3150. 10p.
Publication Year :
2022

Abstract

Objective: To identify what matters to clinicians and patients when discussing cancer medicines' impact on health-related quality of life (HRQoL). Methods: A framework of HRQoL domain/domain elements was developed, informed by analysis of published patient reported outcome measures (PROMs), applicable to prostate cancer. Using mixed methods (eDelphi, Nominal Group Technique and questionnaire), prostate cancer clinicians and patients attending prostate cancer clinics and support groups were asked which domains/domain elements would be important to them when discussing the impact prostate cancer medicines have on their HRQoL. Results: Twenty-one clinicians and 71 patients participated from the West of Scotland. Clinicians and patients identified 53/62 domain elements across seven domains as important, of which 32 (60%) were common to both groups. Clinicians placed more importance than patients on Mood & Emotion; in contrast, patients placed importance on a broader range of Symptoms & Side Effects, being informed about their care, and having effective healthcare professional collaboration. Conclusion: This study provides insight into the similarities and differences between what clinicians and patients think is important when discussing the impact of cancer medicines on HRQoL. Future research should involve exploring the potential for consistency of medicines PROMs across different cancer types to support patient-clinician communication and drive improvements in care. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
09414355
Volume :
30
Issue :
4
Database :
Academic Search Index
Journal :
Supportive Care in Cancer
Publication Type :
Academic Journal
Accession number :
155343007
Full Text :
https://doi.org/10.1007/s00520-021-06724-6