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'Timing it Right': needs of African American adults with stroke and their caregivers across the care continuum.
- Source :
-
Ethnicity & Health . Feb 2022, Vol. 27 Issue 2, p420-434. 15p. 1 Diagram, 1 Chart. - Publication Year :
- 2022
-
Abstract
- Objective: African Americans are disproportionately affected by stroke in the United States (US). The purpose of this study is to explore experiences, wants, and needs of African Americans with stroke and their family caregivers residing in the stroke belt across the care continuum using the 'Timing It Right' (TIR) framework as a conceptual guide. Design: We conducted a series of focus groups among 20 African Americans living with stroke and 19 family caregivers. Focus groups were audio-recorded and transcribed verbatim. For this secondary analysis, we coded qualitative data using the TIR framework. Results: Participants in this sample identified pre-stroke needs in addition to the TIR phases that span across the care continuum and into community living. We identified four important contextual factors and real-world conditions that operate in the background and influence the post-stroke needs of this specific population across the TIR framework: (1) religion, faith, and church, (2) healthcare delivery, (3) community, and (4) sentinel events. Conclusions: We propose a TIR model that expands upon the original TIR framework which includes factors important for consideration when developing and delivering community-based interventions among African Americans with stroke and family caregivers in the southeastern US. [ABSTRACT FROM AUTHOR]
- Subjects :
- *CAREGIVER attitudes
*SENTINEL health events
*FOCUS groups
*MINORITIES
*RESEARCH methodology
*FAMILIES
*MEDICAL care
*PUBLIC health
*INTERVIEWING
*CONTINUUM of care
*CONCEPTUAL structures
*PATIENTS' attitudes
*QUALITATIVE research
*PSYCHOSOCIAL factors
*STROKE patients
*PSYCHOLOGY of caregivers
*INDEPENDENT living
*RESEARCH funding
*NEEDS assessment
*HEALTH equity
*THEMATIC analysis
*SECONDARY analysis
*RELIGION
*CHURCH buildings
*ADULTS
Subjects
Details
- Language :
- English
- ISSN :
- 13557858
- Volume :
- 27
- Issue :
- 2
- Database :
- Academic Search Index
- Journal :
- Ethnicity & Health
- Publication Type :
- Academic Journal
- Accession number :
- 155144863
- Full Text :
- https://doi.org/10.1080/13557858.2019.1693512