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The role of religion and spirituality in caregiver decision-making about tracheostomy for children with medical complexity.
- Source :
-
Journal of Health Care Chaplaincy . Jan-Mar 2022, Vol. 28 Issue 1, p95-107. 13p. 2 Charts. - Publication Year :
- 2022
-
Abstract
- Children with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion and spirituality (R&S) of caregivers of children with medical complexity (CMC) in their decision to pursue tracheostomy for their children. We conducted 41 in-depth interviews of caregivers of CMC who had received tracheostomies in the prior 5 years. Four themes emerged: (1) Caregivers believed R&S to be powerful for their children's healing, and helped them cope with their children's illnesses; (2) Spirituality was an important factor for caregivers in the decision to pursue tracheostomy for their children; (3) Many caregivers did not discuss their spirituality with clinicians for a variety of reasons; (4) Clergy and hospital chaplains played a major supportive role overall; however, they did not play a significant role in the decision-making process. Our study shows the importance of R&S, and the roles of clergy and chaplains in pediatric tracheostomy decision-making. [ABSTRACT FROM AUTHOR]
- Subjects :
- *TRACHEOTOMY
*CAREGIVER attitudes
*OCCUPATIONAL roles
*SERVICES for caregivers
*SPIRITUALITY
*CLERGY
*INTERVIEWING
*FAMILIES
*MEDICAL personnel
*QUALITATIVE research
*PATIENTS' families
*PATIENT-family relations
*DECISION making
*RESEARCH funding
*PSYCHOLOGY of caregivers
*PSYCHOLOGICAL adaptation
*DATA analysis software
*THEMATIC analysis
*CONTENT analysis
*RELIGION
Subjects
Details
- Language :
- English
- ISSN :
- 08854726
- Volume :
- 28
- Issue :
- 1
- Database :
- Academic Search Index
- Journal :
- Journal of Health Care Chaplaincy
- Publication Type :
- Academic Journal
- Accession number :
- 154665026
- Full Text :
- https://doi.org/10.1080/08854726.2020.1755812