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A bioética da intervenção como possibilidade de inclusão social de pacientes com doença falciforme em tempos de COVID-19.

Authors :
Gustin, Clara
Pimentel, Willian
Sarsur, Marcelo
Dadalto, Luciana
Source :
Revista Latinoamericana de Bioética. jul-dic2020, Vol. 20 Issue 2, p41-53. 13p.
Publication Year :
2020

Abstract

This paper discusses from the perspective of intervention bioethics the social exclusion experienced by Brazilian individuals suffering from sickle cell anemia. It is an inherited disease where the gene responsible for the hemoglobin differential format is generationally passed on. It has more incidence in the afro-descendant population than any other, given that this hemoglobin format alteration was an evolutionary response to prevent malaria in the African continent. Besides the social exclusion that this population suffers, there is an even greater degree of discrimination resulting from the disease's effects. It has been recently discovered that COVID-19 has worsened the difficulties faced by patients with this disease. Therefore, drafting intervention-bioethics-based public policies whose main focus relies on vulnerability and the persistent challenges of society is proposed as a possible action to reduce the consequences of patients suffering from sickle-cell anemia. [ABSTRACT FROM AUTHOR]

Details

Language :
Portuguese
ISSN :
16574702
Volume :
20
Issue :
2
Database :
Academic Search Index
Journal :
Revista Latinoamericana de Bioética
Publication Type :
Academic Journal
Accession number :
150158380
Full Text :
https://doi.org/10.18359/rlbi.4703