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Promoting equity in understanding: A cross-organisational plain language glossary for clinical research.

Authors :
Kassis, Sylvia Baedorf
Bahador, Behtash
Gawrylewski, Helle
Gertel, Art
Pickard, Brandis
White, Sarah A.
Bierer, Barbara E.
Source :
Medical Writing. Dec2020, Vol. 29 Issue 4, p10-15. 6p.
Publication Year :
2020

Abstract

Clear communication with the public and with potential clinical trial participants and their caregivers is foundational to the ethical tenets of respect, justice, and beneficence. However, health literacy, even of highly edu - cated individuals, often declines when pre - sented with complex content in unfamiliar contexts and in times of stress, all of which are characteristic of the types of situations people find themselves in when considering and participating in a research study. Here we describe an initiative to pilot the development of a cross-organisational plain language clinical research glossary to promote clarity, consistency, and transparency. The goal is to develop a common resource that can be used across clinical research stakeholder groups to increase understanding of clinical research and empower sound individual decision making. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
20474806
Volume :
29
Issue :
4
Database :
Academic Search Index
Journal :
Medical Writing
Publication Type :
Academic Journal
Accession number :
148030288