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Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors.
- Source :
-
European Journal of Cancer Care . Nov2020, Vol. 29 Issue 6, p1-10. 10p. - Publication Year :
- 2020
-
Abstract
- Objective: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. Methods: Explorative semi‐structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data. Results: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life. Conclusions: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer‐to‐peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer‐to‐peer support interventions along the trajectory of acute leukaemia. [ABSTRACT FROM AUTHOR]
- Subjects :
- *ATTITUDE (Psychology)
*EXPERIENCE
*INTERVIEWING
*LYMPHOBLASTIC leukemia
*RESEARCH methodology
*MEDICAL personnel
*MENTORING
*RESEARCH funding
*QUALITATIVE research
*AFFINITY groups
*JUDGMENT sampling
*SOCIAL support
*THEMATIC analysis
*ACUTE myeloid leukemia
*CAREGIVER attitudes
*DATA analysis software
*PATIENTS' attitudes
*DESCRIPTIVE statistics
Subjects
Details
- Language :
- English
- ISSN :
- 09615423
- Volume :
- 29
- Issue :
- 6
- Database :
- Academic Search Index
- Journal :
- European Journal of Cancer Care
- Publication Type :
- Academic Journal
- Accession number :
- 147106198
- Full Text :
- https://doi.org/10.1111/ecc.13289