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Electronic participation-focused care planning support for families: a pilot study.
- Source :
-
Developmental Medicine & Child Neurology . Aug2020, Vol. 62 Issue 8, p954-961. 8p. - Publication Year :
- 2020
-
Abstract
- <bold>Aim: </bold>To evaluate the feasibility, acceptability, and preliminary effects of Participation and Environment Measure-Plus (PEM+) 2.0, an optimized version of a web-based, participation-focused, care-planning tool.<bold>Method: </bold>Twenty-two caregivers of children aged 0 to 5 years receiving rehabilitation services, who reported dissatisfaction with their child's participation, had internet access, and could read and write English, were recruited for this 2-week, single-arm pilot trial. Feasibility was assessed through retention rates, completion time, percentage of care plans developed relative to caregiver reported need, and independent completion of PEM+ 2.0. Acceptability was assessed by the Usefulness, Satisfaction, and Ease of Use Questionnaire. Preliminary effects were assessed by two items on caregiver reported impact of PEM+ 2.0 on confidence for addressing their child's participation.<bold>Results: </bold>Eighteen caregivers completed at least one iteration of PEM+ 2.0; of those, 17 were female and 15 were 30 to 39 years old. The median completion time was 12.99 minutes (quartile 1, 6.30; quartile 3, 17.33), mean care plan creation relative to need was 50% (standard deviation [SD] 31), and 17 completed PEM+ 2.0 independently. Mean acceptability scores were 3.80 to 4.97 (SD 1.25-1.97) and mean preliminary effect scores were 4.61 to 4.72 (SD 1.85-2.24), out of 7.0. There were strong and significant positive associations between two of the three estimates of PEM+ 2.0 acceptability and caregiver confidence (r=0.577-0.793, p<0.01).<bold>Interpretation: </bold>Electronic health tools have the potential for facilitating family-centered care in pediatric rehabilitation. PEM+ 2.0 is a feasible tool within pediatric rehabilitation and has potential to be an acceptable tool for improving caregiver confidence for promoting their child's participation in valued activities.<bold>What This Paper Adds: </bold>Participation and Environment Measure-Plus (PEM+) 2.0 is feasible for collaboratively engaging caregivers in the care-planning process. Caregivers perceived PEM+ 2.0 as helpful for thinking about their child's participation and what can be done to improve it. Feasibility and acceptability results will inform PEM+ 2.0 optimizations. [ABSTRACT FROM AUTHOR]
- Subjects :
- *PILOT projects
*FAMILY planning
*INTERNET access
*STANDARD deviations
*PARTICIPATION
*RESEARCH
*PATIENT participation
*CAREGIVERS
*CLINICAL trials
*RESEARCH methodology
*FAMILIES
*EVALUATION research
*MEDICAL cooperation
*BURDEN of care
*MEDICAL protocols
*COMPARATIVE studies
*IMPACT of Event Scale
*QUESTIONNAIRES
*RESEARCH funding
*REHABILITATION
*TELEMEDICINE
Subjects
Details
- Language :
- English
- ISSN :
- 00121622
- Volume :
- 62
- Issue :
- 8
- Database :
- Academic Search Index
- Journal :
- Developmental Medicine & Child Neurology
- Publication Type :
- Academic Journal
- Accession number :
- 144337175
- Full Text :
- https://doi.org/10.1111/dmcn.14535