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Teen and parental perspectives regarding transition of care in type 1 diabetes.

Authors :
Holtz, Bree E.
Mitchell, Katharine M.
Holmstrom, Amanda J.
Cotten, Shelia R.
Hershey, Denise D.
Dunneback, Julie K.
Jimenez Vega, Jose
Wood, Michael A.
Source :
Children & Youth Services Review. Mar2020, Vol. 110, pN.PAG-N.PAG. 1p.
Publication Year :
2020

Abstract

• The communication between parents and teens with T1DM is unique. • Providers must be aware how to best communicate with teens with T1DM. • Teens want their parents to be engaged in the process, but not in an aggravating way. • Teens report feelings of denial, shame, anger and embarrassment about having T1DM. • Teens and parents report that attending diabetes camps, having an insulin pump and a 504 plan helped improve adherence. The transition from parent management to teen self-management of type 1 diabetes (T1D) is a stressful, but important, time with substantial long-term health consequences. The purpose of this study was to describe and explore teens' and their parents' perspectives on the transition through the transactional model of stress and coping (TMSC). This evidence will provide us an understanding of key variables of the TMSC to target in an intervention. This qualitative study included 12 teens and 9 parents in Michigan. Subjects participated in semi-structured interviews designed to examine the transition process, using TMSC as a guide. Several themes emerged through the analysis of the interview data. The results of the themes are presented by primary and secondary appraisals. The primary appraisal theme was coded as fear. The secondary appraisal was focused on family communication. Finally, the coping strategies included provider communication, social support and tangible support. Improving parent involvement and providing more social support and educational opportunities to both parents and teens can be possible avenues for new coping interventions. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
01907409
Volume :
110
Database :
Academic Search Index
Journal :
Children & Youth Services Review
Publication Type :
Academic Journal
Accession number :
141754827
Full Text :
https://doi.org/10.1016/j.childyouth.2020.104800