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Development and usability testing of the e-EXCELS tool to guide cancer survivorship follow-up care.

Authors :
O'Malley, Denalee M.
Davis, Stacy N.
Devine, Katie A.
Sullivan, Brittany
Bator, Alicja
Clemow, Lynn
Ferrante, Jeanne M.
Findley, Patricia A.
Miller, Suzanne M.
Hudson, Shawna V.
Source :
Psycho-Oncology. Jan2020, Vol. 29 Issue 1, p123-131. 9p. 1 Diagram, 3 Charts.
Publication Year :
2020

Abstract

<bold>Objective: </bold>The aim of this study is to describe a user-centered (e.g., cancer survivors and clinicians) development process of an eHealth tool designed to facilitate self-management of cancer survivorship follow-up care.<bold>Methods: </bold>Guided by Cognitive-Social Health Information Processing (C-SHIP) model and informed by core self-management skills, we engaged in a user-centered design process. In phase I, we conducted in-depth interviews with survivors of breast (n = 33), prostate (n = 4), and colorectal (n = 6) cancers, and (n = 9) primary care providers to develop content and design of the web tool. Phase II utilized iterative user testing interviews (n = 9) to test the web-based tool prototype. Data from both phases were independently coded using a template/content analytic approach.<bold>Results: </bold>The top 5 functions identified in phase I for the web-based platform included: (a) educational materials to learn and prepare for health encounters (80%); (b) questions for health providers (74%); (c) ability to track contact information of providers (67%); (d) provide general information (64%); and, (e) support information (62%). Users of the prototype reported patient burden, tool fatigue, introduction timing of the tool, relevance, and security/privacy as concerns in phase II.<bold>Conclusions: </bold>This study demonstrates the value of using a theoretically informed and user-centered design process to develop relevant and patient-centered eHealth resources to support cancer survivorship. A larger study is needed to establish the efficacy of this eHealth tool as an intervention to improve adherence to follow-up care guidelines. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
10579249
Volume :
29
Issue :
1
Database :
Academic Search Index
Journal :
Psycho-Oncology
Publication Type :
Academic Journal
Accession number :
141357181
Full Text :
https://doi.org/10.1002/pon.5222