PRO131 WHAT DO WE KNOW ABOUT PATIENT'S AND CAREGIVERS' EXPERIENCE WHEN LIVING WITH THE HEREDITARY RETINAL CONDITION RETINITIS PIGMENTOSA?

Visual impairments associated with RP result in significant impacts on patients' functional vision and health-related quality of life (HRQoL). Findings were used develop a conceptual model of RP, and to inform development of patient-reported outcome and observer-reported outcome measures (for future completion by parents/caregivers). [Extracted from the article]