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"That Felt Like Real Engagement": Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability.

Authors :
Schwartz, Ariel E.
Kramer, Jessica M.
Cohn, Ellen S.
McDonald, Katherine E.
Source :
Qualitative Health Research. Jan2020, Vol. 30 Issue 2, p236-249. 14p.
Publication Year :
2020

Abstract

People with intellectual disability (ID) are increasingly involved in stakeholder-engaged research, such as "inclusive research" (IR). To understand the processes that foster and maintain IR with individuals with ID, we used a narrative interview approach with co-researchers with ID (n = 6) and academic researchers (n = 8). We analyzed the data using grounded theory principles. We then developed a model describing how contextual factors and team-level factors and processes coalesce to foster and maintain IR collaborations. We observed that team members' values and characteristics are foundational to IR and drive a commitment to accessibility. Contextual factors, including funding and partnership duration, influence teams' processes and structures. These processes and structures influence the extent to which co-researchers perceive the IR team to be cofacilitated or academic-facilitated. Co-researcher involvement is partially maintained by perceived personal and societal benefits. Optimizing the relationship between these factors may support involvement of people with ID in stakeholder-engaged research projects. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
10497323
Volume :
30
Issue :
2
Database :
Academic Search Index
Journal :
Qualitative Health Research
Publication Type :
Academic Journal
Accession number :
140353818
Full Text :
https://doi.org/10.1177/1049732319869620